How to Care for Aging Parents, 3rd Edition

The book that answers all the questions you hoped you’d never have to ask.

Hailed as “an excellent resource” by the Family Caregiver Alliance, How to Care for Aging Parents is an indispensable source of information and support.

Now completely revised and updated, this compassionate, comprehensive caregiver’s bible tackles all the touch subjects, from how to avoid becoming your parent’s “parent,” to understanding what happens to the body in old age, to getting help finding, and paying for, a nursing home.

When love is not enough—and regrettably, it never is—this is the essential guide.

Help for every difficult issue:

• Knowing when to intervene
• Coping with dementia
• Caring for the caregiver
• The question of driving
• Paying for long-term care
• Sharing the care with siblings
• Caregiving from a distance
• Home care vs. a nursing home
• The hospice option

An award-winning journalist, Virginia Morris has devoted her career to researching and writing about health care, medical research and related social and political issues for the last 30 years. She is the author of How to Care for Aging Parents, which won the Books for a Better Life Award and instantly became the best-selling book on the subject when it was first released in 1996. It has sold more than 500,000 copies and has been translated into a number of languages. AARP calls it “indispensable." ABC World News declared it the “the bible for caregivers.” And the Wall Street Journal touted it as “the best guide." The third edition was published in 2014. She is also the author of Talking About Death, which came out in 2001. Virginia has been featured on Oprah, The Today Show, Good Morning America, The CBS Morning Show, Primetime, ABC World News with Diane Sawyer, NPR, CNN, and a host of other national media. She testified before Congress at the invitation of Sen. Amy Klobuchar. She now serves as adjunct instructor at Dartmouth’s Geisel School of Medicine, is a member of the Dartmouth-Hitchcock ethics committee, is getting a master’s degree in bioethics at Harvard, and gives talks around the country on aging, caregiving and end-of-life decisions. 
 

On Care-giving:

“If there was such a thing as Care-givers Anonymous, the first step in the program would be to get rid of that little voice inside you that says, I can do it all, I am responsible for everything, and whatever I do, it’s never enough.

Of course you want to make your parent well, make her happy, make her safe. In fact, if it were possible for you to be with her every minute of the day, perhaps you would be, But the truth is that you can’t personally do everything that needs to be done for her, and trying to do so will only exhaust and frustrate you without really helping your parent over the long haul.

So how do you use your energies most effectively? IF your mother has a sudden and severe illness, of course you’ll want to be there. But when her needs are more chronic, when you find yourself taking on more and more responsibility over a matter of months or years, you must step back, take a realistic look at the situation and draw some boundaries for yourself. Determine what you can reasonably do for your parent and, more important, what you have to stop trying to do. As hard as this is, you may be surprised to discover that setting some limits will relieve your guilt and ease some tension. And you will have more patience and energy for those things that only you can give.

“For a long time I visited my mother twice a week, but I was always running and always tired. I started to dread each visit and I was angry at her because I felt it was all her fault. She was ruining my life. Then a friend said to me, ‘This isn’t her fault. It’s your fault.’ And, you know, she was right.”

– Fran M.

On Medicaid and Nursing homes:

There is a myth a that anyone who is on Medicaid will automatically receive inadequate, unacceptable nursing home care. It’s true that the plushest nursing homes do not accept people on Medicaid. It’s also true that most other homes limit the number of Medicaid patients they will accept. But plenty of attractive, well-mannered nursing homes accept Medicaid patient – about one third of all nursing homes have at least some Medicaid patients.

Remember, an expensive nursing home isn’t a guarantee that your parent will get loving, devoted care, just as a run-down exterior doesn’t always mean shabby care. Appearance is an important clue to what kind of service is provided, but the quality of care comes from the people who work in the facility – the philosophy of the administrators and the devotion of the staff.

Many of the residences that accept Medicaid favor self-paying patient and admit only a small number of Medicaid patients. A nursing home with 200 beds, for example, may admit only 15 or 20 Medicaid patients at any given time. Consequently, to get your parents into one of the better Mediciaid-certified homes, you need to get his name on waiting lists early or help him set aside enough money so that he can apply as a self-paying resident. If your parent has some savings – enough to cover at least six months of nursing home care, and preferably more – he will have a far better chance of being accepted by the home of his choice. Once he is admitted, he cannot b e discharge when he goes on Medicaid, even if those beds set aside for Medicaid patients are full.

Once your parent is in a home, you can see to it that he gets the best care possible by establishing a rapport with the staff and monitoring his care closely.

On Dementia:

In the early stages, it is difficult to distinguish between dementia and benign aging. The symptoms of dementia can b e fairly innocuous at first and most people compensate for minor metnal slip-ups with reminders and notes, or they find excuses for their erros. Oh, I’m sorry about our date. I was sure we said Tuesday. Social skills are usually the last to go, so during short visits a person with early dementia may seem perfectly fine. He may chat about old times, and remember who’s who and what’s happening. Families and friends, who don’t want to believe that something might be wrong, are more than happy to dismiss a slightly disheveled appearance or a few memory lapses.

At some point, however, the problems become hard to ignore. The dementia begins to interfere with relationships and the details of daily life, such as shopping, paying bills or selecting clothing. Your parent might lose a particular skill – an avid crossword puzzle fan may have trouble filling in the blanks, a lifetime golfer may fumble over selecting the proper clubs.

If you suspect dementia, think carefully about what your parent was like before. Are these problems really new or did you simply fail to notice them earlier? All of us are far more aware of memory slips in older people than in younger ones. When Grandpa loses his hat repeatedly an alarm goes off, but there isn’t even a second thought when a teenager keeps losing his.

Generally, in dementia, a person’s memory doesn’t just slip in, it disappears. He doesn’t simply miss an appointment, he insist he never had one. He doesn’t just lose his glasses, he forgets that he wears glasses. He doesn’t forget who spoke at a meeting, he doesn’t know he ever went to a meeting.

In addition to memory problems concerning specific facts, a person with dementia may easily become lose or disoriented, even near his home or in another familiar place He may have trouble with language, so he will grope for the right word, use the wrong word or resort to gibberish. His emotions may become heightened and irrational, and unpleasant personality traits can become amplified. He might also become accusatory, critical or uncharacteristically aggressive. He may have trouble sleeping. And he is likely to have trouble concentrating, reasoning and making decisions. Whatever the symptoms, they usually grow progressively worse.

Good Grief:

Your parent is gone. He was old and sick, and it was probably time. Yet the loss is jarring. Your world has changed. A big piece is missing.

Grief rolls in like a series of waves, washing you in sorrow, confusion, anger, relief and regret, It may pulse through you evenly or crash down on you when you least expect it. If you were close to your parent, you may feel as though your very core has been assaulted and that life will never be the same again. In fact, it won’t be. With time, the hole will grow smaller and less painful, but a bit of it will always remain.

You can’t control your grief, shake it off or speed it up, and you shouldn’t try. Grief is a necessary and valuable process that allows you to accept this loss, say good-bye to your parent and move on with your life and other relationships. It is not something to race through or escape from. Allowing yourself to feel it in your own way and at your own pace.

“I have kept myself so busy since she died, perhaps because there ahs been so much to do, perhaps because I want to be distracted. But now I find myself crying sometimes when I’m driving home from work. During that quiet time alone the reality sets in that she’s not here anymore.”

– Nelly O.

Excerpted from How to Care for Aging Parents. Copyright c 1996 by Virginia Morris. Reprinted with permission of Workman Publishing.

Your Parent and You
Adapting to New Roles, Knowing When to Intervene, Defusing Old Struggles, Managing Day-to-Day, the Difficult Parent

Caring for the Caregiver
Setting Limits, The Male Caregiver, Emotional Minefields: Guilt, Anger, Grief, Depression, Support Groups, When One Parent is Well, 12 Steps to a Healthy Mind-Set

Healthy Aging
Pumping Iron: finding the Right Exercise Program, The ABCs of Diet, The Liquor Cabinet, Up in Smoke

Heart, Mind, and Soul (83)
Staying Involved, Family and Friends, Spirituality, Creativity, Volunteering, Expanding the Mind, Dating, Sex, and Marriage

Tips for Daily Living (102)
Safety First, Preventing Falls, Bathing and Dressing, Eating Right, The Question of Driving, Useful Gadgets and Gizmos

More Help, at Home (152)
Home Health Care, Nurses, Therapists, and Aides, The Hiring Process, Managing the Troops, Respite Care

The Inner Circle (169)
Sharing the Care with Siblings, A Family Meeting, Spouses, The Sandwich Generation: Aging Parents and Young Children, Balancing Career and Caregiving

Doctor Do’s and Don’ts(193)
Rx for the Elderly, A Good Doctor, A Geriatric Checkup, Being an Informed Advocate, Complementary and Alternative Medicine

The Body Imperfect: Part I (214)
On the Lookout for Symptoms, Overseeing Medications, Vision and Hearing, Insomnia, Dehydration, TLC for Skin, Legs, and Feet, Dental Care

The Body Imperfect Part II (254)
Osteoporosis and Arthritis, Incontinence, Constipation, Other Digestive Disorders

Matters of the Mind (280)
Depression: Diagnosis and Treatments, Anxiety Disorders, Delirium

On the Fifth Floor (294)
Entering the Hospital, Tests, Surgery, and Treatments, Dealing with Staff, Your Role as Advocate, Comfort on the Fifth Floor, When You are Far Away, Preparing for Discharge, Bills

Paying the Way (322)
Talking about Money, Financial Planning and Budgets, Benefits and Discounts, Homes as Collateral, Tax Tips, Using Your Own Funds, Financial and Legal Counsel, Frauds and Scams

Paying for Healthcare (346)
What Medicare Really Covers, Prescription Drugs, Medigap Plans, Medicaid, Long-Term Care Insurance

Legal Issues (376)
Wills, Power of Attorney, Advance Directives, Trusts, Reducig Estate Taxes, Probate, Guardianship, Legal Help

Home Away from Home (402)
Is it Time to Move?, Sharing Your Home with Your